Act Now to Ensure the CFC Option and CLASS ACT Remain in Healthcare Reform!

Call Sen. Shelby and Sen. Sessions, today, and ask for their support!

You may call toll-free (thanks to Families USA): 1-800-828-0498 or use the
Capitol switchboard: 202-224-3121.

Message

I am calling to urge Senator _________ to ensure that both the CLASS Act and
the Community First Choice Option are included in the final healthcare
reform bill in the Senate. People with disabilities who need long term
services and supports now or in the future should be:

1. a part of the solution;
2. able self-determine the services and supports that they really want;
3. able to have the freedom to choose where they want to live.

Background Information

This week the Senate Finance and the Senate Health, Education, Labor and
Pensions (HELP) Committees are merging their separate healthcare reform
bills into one single bill that will go to the Senate floor to be debated as
early as next week. Two critical provisions that change the way long term
services are delivered and funded for people with disabilities are included.
These two provisions complement one another and must be a part of the final
Senate bill!

The Finance Committee bill includes the Community First Choice (CFC)
Medicaid Option. This state option will allow the states to offer broadly
defined attendant services and supports in one's home or community setting
to individuals eligible for nursing home, ICFs/MR, and other institutional
level care. To encourage the states to implement the CFC Option, the state
will receive a 6 percent increase in its federal medical assistance
percentage (FMAP) match for services provided under this option. The CFC
moves us one step closer to ending the institutional bias in Medicaid!

The Health Education Labor and Pensions (HELP) Committee's bill includes the
Community Living Assistance Services and Supports Act (CLASS) Act. The CLASS
Act would create a solvent, affordable, premium-based, national insurance
program providing a cash benefit that can be used for assistance with the
activities of daily living. This helps state Medicaid budgets because many
people will have a way to avoid becoming impoverished by spending down to
Medicaid eligibility levels. The CLASS Act complements the CFC Option and
Medicaid, Medicare, and private long term care insurance.

Community First Choice Amendment Now Included in Senate Finance Committee Healthcare Legislation!

NCIL alerted our members this week to the importance of supporting the Community First Choice Option as an amendment to the Senate Finance Committee healthcare bill. The amendment was offered by Senator Chuck Schumer (D-NY) and accepted by Chairman Max Baucus. This means that it will be included in the modified version of the bill, also known as the “Chairman’s Mark”, which is being debated this week! This is incredible news, as this amendment will advance our efforts to end the institutional bias!

The CFC Option would encourage states to provide Medicaid home and community based attendant services, rather than require them as the Community Choice Act would. The cost of the CFC Option is estimated to be $1 billion over five years. It includes a “sunset provision”, which means that after five years Congress will need to approve keeping the CFC Option in place.

One important feature of the Chairman's Mark language is that the Money Follows the Person program would be modified to move the basic eligibility requirement of six months of institutionalization to only 90 days.

What Will Happen Next:

Since the CFC Option is now part of the Finance Committee’s bill (assuming there are no objections), the amendment does not need to be offered and debated during the ongoing mark-up process. If the Finance Committee passes the bill after mark-up, it will be merged with the bill passed in the Senate Health, Education, Labor and Pensions (HELP) Committee. Once a final bill is created from the two versions, it will be voted on by the full Senate. Having the CFC Option as a part of Senate Finance Committee mark is a huge step forward, but we still have important work to do.

What to Do Now:

Please contact your Senators and let them know that you support the Community First Choice Option in the Senate Finance Committee bill, and that it is critical that it be kept in the final version approved by the Senate. It is also important to thank those who have made this possible. Senator Baucus (MT) and David Schwartz (from the Senate Finance staff) were crucial in making this happen. NCIL also appreciates the efforts of Senator Schumer (D-NY) for submitting the CFC Option Amendment and Senator Harkin, our Senate champion who has tirelessly fought to eliminate the institutional bias. Call and thank them!

You can call using this toll-free number: 866-324-0787. A switchboard operator will connect you directly with the Senate office you request.

FYI: If you have no health insurance

Federally-funded health centers are mandated to provide care for you, even if you have no health insurance. You pay what you can afford, based on your income.

Health centers are in most cities and many rural areas. Go to http://www.findahealthcenter.hrsa.gov/Search_HCC_byCounty.aspx Type in your address and click the 'Find Health Centers' button to find health centers near you.

Health centers provide:
1. Check-ups when you are well
2. Treatment when you are sick
3. Complete care when you are pregnant
4. Immunization and check-ups for your children
5. Dental care and prescription drugs for your family
6. Mental health and substance abuse care if you need it

Huge Turnout for Home Repair and Energy "Connect" Event

On August 20, 2009, the first Home Repair and Energy Conservation Event was held at the Community Health Systems Activity Center. Over 147 people came seeking help, information and resources. The event focused on assisting low-income individuals, senior citizens, and people with disabilities needing help with home repair, weatherization, and home modification.

The sponsors embraced this event from its conception several months ago until it ended last night. Sponsors included the Walker Area Community Foundation, Red Cross, Community Action, Retired Senior Volunteer Program, USDA Rural Development, Community Action (Decatur), Habitat of Humanity, United Way of Central Alabama, Independent Living Resources, Witcher Office Supply, Grace Nicholas, Sandy Perry, Jasper City Councilperson Sandy Sudduth, and former Jasper Mayor Don Goetz. Last, but not least, the volunteers from Red Cross who stepped up and just seemed to know what to do.

Walker County is a place where people and agencies work together for the common good with an attitude of “Just do It”…and we did.

Trecia Benefield

IL Specialist

For more informarion go to http://www.ilrgb.org/news.php

War Eagle, Arkansas--The Movie

Yesterday I received word that an independent film called War Eagle, Arkansas will be shown in Birmingham this weekend. This movie is about two friends, one with a disability. I went to their website (www.wareaglearkansas.com), to read more about the movie and the story. While reading the story synopsis, I was disappointed to see the language was not Person First. In describing the young man with a disability, the story synopsis stated, " He has been confined to a wheelchair since early childhood,"I have contacted the movie's publicist, Theba Lolley, stating my disappointment with the language used in describing the young man with a disability. I explained to her the importance of using person first language and the proper statement would be, "He has used a wheelchair for mobility since early childhood."I would encourage each of you to contact Ms. Lolley at 501-246-1964 or tlolley@sbcglobal.net and explain to her the importance of person first language.

19th Anniversary of the Americans with Disabilities Act

With the 19th Anniversary of the Americans with Disabilities Act (ADA) coming up on Sunday, July 26th, I would like to reflect upon the importance of advocacy that was involved in getting this legislation passed. The ADA did not just happen, people with and without disabilities had to advocate a long time before this legislation was brought up then passed. Justin Dart was the lead advocate and is now considered the "Father of the ADA". After the Civil Rights Act of 1964, Mr. Dart, along with with many others, saw the need for a Civil Rights Act for people with disabilities. Many people advocated for the ADA and it was passed. Advocacy is still important today, especially with the Community Choice Act and the CLASS Act being debated in Congress. Help continue working for rights of people with disabilities. BE AN ADVOCATE!

Action Alert: Obama Administration Continues Institutional Bias in Healthcare Reform

Take action to eliminate the institutional bias!

1. Contact the Obama Administration with this message: http://capwiz.com/rochestercdr/issues/alert/?alertid=13699476.

2. Please use the links below to send a personal message to the senior White House staff that they must eliminate the institutional bias as a part of healthcare reform.

· Jeffrey Crowley: Jeffrey_S._Crowley@who.eop.gov

· Kareem Dale: Kareem_A._Dale@who.eop.gov

3. Forward the alert to grassroots members in your groups asking them to take action to eliminate the institutional bias.

For more information and an update on the Community Choice Act go to the IL Resouces website at: http://www.ilrgb.org/news.php